Improved screening for dyslexia worldwide
Submitting Institution
University of SheffieldUnit of Assessment
Psychology, Psychiatry and NeuroscienceSummary Impact Type
SocietalResearch Subject Area(s)
Medical and Health Sciences: Public Health and Health Services
Education: Specialist Studies In Education
Psychology and Cognitive Sciences: Psychology
Summary of the impact
There are over 3 million dyslexic people in the UK. Without support,
disproportionate numbers of dyslexic children end up with low literacy
skills, unemployed, and with significantly higher incidence of mental
health problems. Low literacy is a major cost both to schools and
subsequently.
It is now well established that early identification and intervention is
the most effective method of reducing these problems. Sheffield
researchers have been pioneers in 'translational dyslexia' — developing
theory and turning it into applied action. They were the first in the
world to use the science of learning to develop a theory of dyslexia; the
first to publish a normed screening test that could be used by teachers
for effective early diagnosis; and the first to develop and validate a
combined screening and support package that could be used by teachers for
early intervention.
These innovations have led to impacts on a range of levels: the screening
tests have been used for hundreds of thousands of children in the UK, and
translated into eight further languages; and the interventions have been
cited as examples of best practice for practitioners in England and Wales,
and in India.
Underpinning research
Nicolson and Fawcett were the first to establish that dyslexic children
frequently show difficulties in acquiring any skill where fluent, smooth,
automatic performance was needed, and their automaticity deficit
hypothesis (Cognition, 1990, 35,159-82) stimulated a range of
theoretical and applied investigations via research undertaken (with
funding from Leverhulme and MRC) over the period 1993-6. This research
(now with 200 citations on Web of Science and 440 on Google Scholar,
reflecting its strong impact within and outside academia) led to important
developments in theoretical causal explanations for dyslexia at the level
of cognitive performance for speed and automaticity, impaired subcortical
functioning in the cerebellum [R4], and then a `neural circuit'
level for procedural learning [R3], which was able to account for
all the developmental disorders within the framework of the cognitive
neuroscience of learning. This theoretical work has been highly
influential in dyslexia research, now involving three of the major
theories, all with strong academic influence and citations.
Undoubtedly, however, the `translational' outcomes are of broader impact
[R1-R2]. Analysis established that dyslexic children between 8 and
17 showed difficulties in a range of simple skills associated with
learning, but not directly related to reading. It is therefore possible to
test for `risk' levels before a child fails to learn to read, and
this understanding led to the development of the first screening test for
pre-readers — a battery of simple tests that take 30 minutes for a teacher
to administer, and provide a profile of performance as well as a composite
'dyslexia index'. The availability of each individual child's 'profile' of
scores on the range of sensory, cognitive and motor skills was then used
to underpin the third phase of research, supported by the Nuffield
Foundation, which led to the development of cost-effective intervention
methods [R5-6].
The Psychological Corporation (later Pearson Education) first published
the Sheffield tests between 1996 and 1998, including tests for ages
4.5-6.5 (Dyslexia Early Screening Test — DEST,1996), 6.5-16.5 (Dyslexia
Screening Test — DST, 1996,) and 16.6-70+ (Dyslexia Adult Screening Test —
DAST, 1998,). There are 240 references on Google Scholar, which includes
the applied base, including 98 for the DST. These three tests provide
measures of fluency, as well as accuracy across a range of skills, and can
be compared with norms to identify a profile of strengths and weaknesses.
DEST was the first test ever to use theory to determine a predictive test
for dyslexia before a child failed to learn to read. The tests have been
welcomed by both the major umbrella charities for dyslexia, the British
Dyslexia association and Dyslexia Action.
The tests are unique in the breadth of coverage of skills and have been
designed to empower teachers to recognise and identify learning
difficulties, consistent with the 1994 Department for Education UK Code of
Practice that requires schools to identify and support problems within the
classroom [R1-R2].
The research moved into a broader, more applied arena in 2007, with the
appointment of Fawcett to a Chair in Child Research at Swansea University.
Fawcett continued to collaborate with Nicolson in Sheffield over this
period, and returned to work with the University of Sheffield on
retirement in January 2011.
References to the research
R1. Fawcett, A.J.; Nicolson, R.I. (1999). Performance of dyslexic
children on cerebellar and cognitive tests. Journal of Motor Behavior,
31, 68-78. doi: 10.1080/00222899909601892
(80 citations)
R2. Nicolson, R I.; Fawcett, A.J. (1995). Balance, phonological
skill and dyslexia: Towards the Dyslexia Early Screening Test. Dyslexia
Review, 7, 8-11 (Journal of Dyslexia Action)
R3. Nicolson, R.I.; Fawcett, A.J. (2007). Procedural learning
difficulties: reuniting the developmental disorders? Trends in
Neurosciences, 30, 135-41. doi: 10.1016/j.tins.2007.02.003
(58 citations)
R4. Nicolson, R.I.; Fawcett, A.J.; Dean, P. (2001) Developmental
dyslexia: the cerebellar deficit hypothesis, Trends in Neurosciences,
24, 508-12 doi: 10.1016/S0166-2236(00)01896-8
(248 citations)
R5. Nicolson, R.I.; Fawcett, A.J.; Moss, H.; Nicolson, M.K.;
Reason, R. (1999). Early reading intervention can be effective and
cost-effective. British Journal of Educational Psychology, 69,
47-62. doi: 10.1348/000709999157563
R6. Fawcett, A.J.; Nicolson, R.I.; Moss, H.; Nicolson, M.K.;
Reason, R. (2001). Effectiveness of reading intervention in junior school.
Educational Psychology, 21, 3, 299-312. doi: 10.1080/01443410124914
Details of the impact
Dyslexia leads to major difficulties at individual, organisational and
societal levels (see Hakkaart-van Roijen et al., 2011). The
cost-effectiveness of an intensive treatment protocol for severe dyslexia
in children has been assessed at around €58,000 per quality-adjusted life
year (QALY) for primary school children (Dyslexia 17: 256-67).
There is therefore great scope for translational dyslexia research. All
three interconnected strands of the Sheffield translational work — theory,
diagnosis, and intervention — have led to impact in their own right, and
in combination. Consequently, the availability, which started with the
Sheffield tests, of screening and support has had a major impact
worldwide.
Impact on educational practice nationally: uptake
The Dyslexia screening tests (DST) produced by Sheffield have been
heavily used in UK educational establishments. The success of the first
editions led to second editions in 2004, still with strong sales, with the
DST split into two age ranges (6.5-11.5 and 11.6-16.5) to allow the tests
to be more sensitive at each age range. The most recent sales data from
Pearson, the distributor for the kits, indicate sales from 2008-12 [S1]
of around [text removed for publication] kits per year, together with
further re-sale of forms, and show that the DST-J (aimed at primary school
children) and DST-S (aimed at secondary school children) reach not only
schools but also children's services, clinics, learning centres,
individual practitioners, psychology teams, therapy centres and
universities. The adult test, the DAST, is extensively used in employment
and in the University sector to identify potential problems.
Impact on national education policy and practice
Ten-week intervention studies based on DEST/DST-J profiles [R5-R6]
have been identified as an example of best practice in terms of
effectiveness and cost-effectiveness [S2]. The DEST/DST series of
tests were identified as the most highly used screening tests in a report
to the Scottish government drawn from 100% of Scottish schools. Demand for
training in the use of screening tests is high and increasing, with the
British Dyslexia Association mounting 38 training sessions annually for
both the primary and secondary sectors [S3]. As the major screening
test for adults, a subset of tests from the DAST was chosen to identify
dyslexia in 8,809 34-year-olds from the 1970 British Cohort study. In June
2008, Fawcett's written and spoken evidence as Advisor to the Welsh
Assembly government led to national policy recommendations [S4]
that endorse the importance of early screening for dyslexia. This approach
is now ongoing in 36 primary schools in South Wales and newly adopted for
Pembrokeshire. The Welsh language version is recommended nationally and
has been developed in conjunction with Dyslexia Wales, whose head
describes it as "a vital tool for the assessment of children in Wales
who are taught through the medium of Welsh." [S5]
The potential for use of the test with other disabilities was illustrated
by Action Duchenne, whose screening and intervention programme identified
a profile of difficulties amenable to support (the charity won the
National Lottery Education Award for this study, in November 2011). "These
screening tests are particularly appropriate for a range of
developmental disabilities, because they cover a broad range and measure
fluency as well as accuracy." [S6].
Impact internationally: translations into other languages
In many countries, including the Balkans and India, learning difficulties
have been stigmatised, so that parents have been reluctant to seek help
for their children. Dyslexia is only recognised in two states in India,
and children are not diagnosed until age 12 or above, leading to
significant mental health issues. The availability of screening and
support that can be delivered by teachers can cut into this cycle and so
the test has been universally welcomed [S7]. Dr Sunil Karande,
paediatrician, noted "Thank you for developing the DST-J India, which
has tremendous potential for resolving some of the issues related to
SpLD in India."
The most successful screening test in terms of sales and usage, the DST-J
for ages 6.5-11.5, has been translated into Dutch, Spanish, Indian and
Welsh and normed and published by Pearson Education. The strongest
overseas uptake is in the Netherlands, where [text removed for publication]
full kits and [text removed for publication] sets of record
forms have been sold annually over this period. Figures from Pearson India
show sales of [text removed for publication] kits during the first eleven
months of its availability. Export of the English versions has been
steady, with [text removed for publication] full kits and [text removed for publication]
sets of record forms exported in 2012 [S1]. The
screening tests have also been translated into other languages and normed
for use in many countries, including Greece, Israel, South Asia, the USA
and the United Arab Emirates.
International development and policy
As a consequence of her high profile internationally, Fawcett was
appointed as "Special Envoy to the World" for Dyslexia International and
undertook a range of international profile-raising visits. These include:
- Invited presentation and launch of DST-J India at the World Education
Summit, New Delhi, 2012. Press coverage noted `the importance of the
DST-J India in bringing about a change in the way schools identify and
support the special learning needs of children with dyslexia [S7]'.
- Invited presentations and collaboration with the University of Tuzla
in Bosnia led to an invitation to Fawcett to lead a €500,000 Tempus
proposal on screening and support for dyslexic students in HE, selected
as best practice for inclusion in Tempus@20, 2011. Adult screening tests
were normed for Bosnia and used to identify dyslexic students (it had
previously been feared that the project would fail because no dyslexic
students had been recognised). Four TV companies broadcast material from
the final conference. As a direct consequence, legislation was brought
in to recognise dyslexia in higher education, and a dyslexia association
was set up to provide support for children and parents in schools [S8].
- Invited presentation by Fawcett in South Africa in 2008 on screening
and intervention to voluntary group SAALED led to the introduction of
free teacher training to South Africa with the University of
Johannesburg (potential 200 teachers annually from 2012)
- Invited presentation in Singapore on early screening in 2009 led to
the adoption of an early intervention policy by the Dyslexia Association
of Singapore (DAS) [S9]. "If we can work with the preschool
fraternity, to identify children at risk of dyslexia, I think that
would be very good, and a big step towards helping these children much
earlier. From the results of the past few years, over 80 per cent of
students on our preschool programme are subsequently diagnosed with
dyslexia." [S9]. DAS has its own pre-school assessment
programme that helps to identify children who could be dyslexic, used in
conjunction with DEST [S9].
- Invited presentation in Sarawak at the 1st Asia Pacific
conference on Dyslexia in June 2013 led to a commitment from the
Minister of Welfare to universal early screening beginning at pre-school
level, to allow for the implementation of appropriate interventions.
Public education and understanding
An important aspect of the screening tests has been in helping parents,
pupils, teachers and researchers to fully appreciate the range of
difficulties experienced in dyslexia. As Vice President of the British
Dyslexia Association, Fawcett was responsible for compiling and editing
the 2013 Handbook on Dyslexia for parents, teachers and dyslexic adults. A
key component was an article by Nicolson on Positive Dyslexia, a new
discipline that builds on the ability to diagnose weaknesses, as
represented in the DSTs, but goes beyond that to focus on the other side
of the coin, the strengths. This work has already inspired a set of
symposia in the USA and has captured the imagination of the dyslexia
community on both sides of the Atlantic, with a slideshare presentation
attracting nearly 15,000 viewings since November 2012 [S10].
Sources to corroborate the impact
S1. Letter from Education Manager, Pearson Education, 2013.
S2. Caravolas, M., Kirby, A., Fawcett, A.J., Glendinning, K.
(2012) Research into dyslexia provision in Wales: literature review on the
state of research for children with dyslexia.
(http://tinyurl.com/oeva6rk, page
38) corroborates that the intervention has been identified as best
practice.
S3. Screening for dyslexia (http://tinyurl.com/pqfcoff).
S4. National Assembly for Wales Enterprise and Learning Committee
(2008). Support for People with Dyslexia in Wales. National
Assembly for Wales (http://tinyurl.com/qf7bdq2).
The Committee report cites or includes oral evidence on 24 occasions.
S5. Letter from Director, Dyslexia Wales
S6. Letter from Director, Action Duchenne
S7. Letter from Marketing Manager, Pearson India
S8. Letter from Project leader, Tempus Bosnia
S9. http://www.das.org.sg
S10. Positive Dyslexia: working to our strengths (http://tinyurl.com/ptquxe8).