Improving policy and services for LGBT health and well-being through participative action research
Submitting Institution
University of BrightonUnit of Assessment
Social Work and Social PolicySummary Impact Type
HealthResearch Subject Area(s)
Medical and Health Sciences: Public Health and Health Services
Summary of the impact
Since 2003, participatory action research in Brighton and Hove has
identified the specific health and well-being needs of LGBT people in
mental health, safety, housing, drugs and alcohol. The research changed
local and national policy and reshaped services to reflect the diverse
needs and experiences of LGBT communities. In the UK, the research
influenced policy resulting in the first local LGBT housing strategy and
the first suicide strategy in Brighton that centralises LGBT people. The
research played a key role in ensuring the survival of the only LGBT
mental health charity in the UK. Recommendations from the research have
been adopted in the UK by the Department of Health, the UK Drug Policy
Commission, the Cabinet Office and the Equalities and Human Rights
Commission. The research has influenced policy developments in Australia
through the National LGBTI Health Alliance and has been incorporated into
a guide to GLBTI inclusive practice for health and human services in the
state of Victoria.
Underpinning research
The psychological health and well-being of lesbians, gay men and bisexual
people has been identified as a key national issue with reference to
issues of suicide, physical abuse and alcohol and drug misuse. JOHNSON and
BROWNE have driven the development of an internationally recognised strand
of community based research on understanding and transforming LGBT health
and well-being needs. The research has been closely linked to the funding
and collaborative approach to impact of the university's Community
University Partnership Programme (CUPP) (REF3a). Two studies were
developed in Brighton and Hove, the `gay capital' of the UK: Count Me In
Too (CMIT) (2005-2010) led by BROWNE, and the LGBT Suicidal Distress (SD)
project (2005- 2008) led by JOHNSON. The latter built on JOHNSON's
collaborative research published in King et al. [reference 3.1] that first
revealed the link between discrimination, poor mental health,
psychological well-being and suicidal distress.
The findings of the two projects have produced new knowledge about mental
health, health, housing and community safety needs of LGBT communities
that challenges narrow approaches to dealing with LGBT safety,
demonstrating a need for a broader social policy framework that moves away
from constrained views of abuse and hate crime [3.2, 3.3, 3.4]. This has
also advanced the process of doing research with LGBT collectives [3.2,
3.5], and the need for wider inclusion approaches to enable trans- and
bisexual individuals and organisations greater access to influence service
provision in line with their specific health and well-being needs [3.2,
3.4].The original aim of CMIT was to investigate marginalisation amongst
LGBT people in Brighton and Hove, providing a full-scale needs assessment
of LGBT people in this area. This project established that 73% had
experienced some form of discrimination in the previous five years and 50%
had experienced some form of mental health issue [3.3]. It also
distinguished between and established the need for both LGBT specific
and LGBT sensitive services [3.2, 3.4].
JOHNSON developed the insights produced in the original King et al. study
[3.1] via one of the only qualitative studies of experiences of LGBT
suicidal distress in existence [3.4] and showed that this is linked to a
range of negative experiences of identity formation and discriminatory
practices, including family, school, work, and bullying. Methodologically,
the original use of participatory action research (PAR) in the field of
LGBT health and well-being brought together communities, service
providers, politicians, practitioners and academics in the design,
delivery and dissemination to co-produce research that worked for positive
social change. This research engaged a range of LGBT voices, particularly
trans and bi people [3.2, 3.3, 3.4], and identified that the way LGBT
people are represented in research is itself an important site for social
transformation if a history of marginalisation and oppression is to be
overcome [3.5]
Key researchers:
|
|
Katherine Browne: |
Lecturer (Jan 2003–Aug 2004), Senior Lecturer (Sept 2004–Aug
2010), Reader (Sept 2010–to date). |
Paul Faulkner: |
Research Assistant (Sept 2005–Sept 2006). |
Katherine Johnson: |
Lecturer (Aug 2002–Aug 2003), Senior Lecturer (Sept 2003–July
2006), Principal Lecturer (Aug 2006–to date). |
Jason Lim: |
Research Fellow (Nov 2007–Jan 2010), Lecturer (Jan 2013–to date). |
References to the research
[3.1] KING, M., MCKEOWN, E., WARNER, J., RAMSAY, A., JOHNSON, K., CORT,
C., WRIGHT, L., BLIZARD, R. and DAVIDSON, O. (2003) Mental health and
quality of life of gay men and lesbians in England and Wales: Controlled,
cross-sectional study. British Journal of Psychiatry, 183,
pp.552-558. [Quality validation: output in leading peer-reviewed journal.]
[3.2] BROWNE, K. and BAKSHI, L. (2013) Ordinary in Brighton? Lesbian,
gay, bisexual and trans lives and activism. Aldershot: Ashgate.
[Quality validation: output has been through rigorous peer-review
process.]
[3.3] BROWNE, K., BAKSHI, L. and LIM, J. (2011) `It's something you just
have to ignore': understanding contemporary lesbian, gay, bisexual and
trans safety. Journal of Social Policy 40(4), pp.739-756. [Quality
validation: output in leading peer-reviewed journal.]
[3.4] JOHNSON, K., FAULKNER, P., JONES, H. and WELSH, E. (2007) Understanding
suicidal distress and promoting survival in the LGBT communities.
Brighton: Brighton and Sussex Community Knowledge Exchange Project.
[Quality validation: output has formed a reference point for further
research, including Health & Social Care in the Community Volume
16 (3), pp.329-336, May 2008, and; Minority stress and health:
implications for lesbian, gay, bisexual, transgender, and questioning
(LGBTQ) young people, in Counselling Psychology Quarterly 22
(4), 2009.]
[3.5] JOHNSON, K. and MARTINEZ, A. (2012) Rethinking concepts in
participatory action research and their potential for social
transformation: post-structuralist informed methodological reflections
from LGBT and trans-collective projects. Journal of Community &
Applied Social Psychology. Published online in Wiley Online Library
DOI: 10.1002/casp.2134. [Quality validation: output in leading
peer-reviewed journal.]
Key research grants:
BROWNE, Count Me in Too: Exclusion and Marginalisation in Gay
Brighton; (Brighton and Hove City PCT, Brighton and Hove City
Council and CUPP/Brighton and Sussex Knowledge Exchange) 2005-2007; total
funding: £36,000.
JOHNSON, Suicidal Distress in LGBT Communities (CUPP/Brighton and
Sussex Community Knowledge Exchange Programme and the Children & Young
People's Trust); 2005-2008; total funding; £13,136.
BROWNE, Count Me in Too: LGBT Communities of Practice Project;
(CUPP/South East Costal Communities Fund) 2008-2010; total funding;
£95,000.
Details of the impact
Influencing policy in local authorities and the NHS: CMIT was
central to the development of local policies on alcohol community safety
and domestic violence, and contributed directly to the UK's first local
LGBT specific housing policy (source 5.1). The Housing Strategy Manager
for Brighton and Hove City Council has stated that `CMIT was of
fundamental use in helping us to develop the city's LGBT People's Housing
Strategy 2009. The research provided a vivid insight into the lives and
experiences of the city's LGBT communities that we would not have got from
our traditional engagement routes' (5.2). The Housing Strategy is also
being used by LGBT community groups in Irish LGBT community organisations
— GLEN and BeLong (5.3).
The extent of need identified in the findings on mental health from CMIT
and the Suicide Distress research led to the incorporation of these
recommendations into Brighton and Hove's first Suicide Prevention
Strategy, 2008-11 (5.4) and the NHS Brighton and Hove's Single Equality
and Human Rights Scheme 2010-13 (5.5). The two studies underpin a chapter
on LGBT community resilience in the Director of Public Health's annual
report 2010 (5.6), where the researchers are cited as contributors, and
the research underpins the sexual orientation section of Brighton and Hove
Joint Strategic Needs Assessment (JSNA 2013). The localised and
participative nature of the research was key to making these initiatives
possible, and the opportunities to develop ground breaking research that
challenged key stereotypes, and engaged politicians and heads of service,
were imperative to the impacts achieved in the local area.
Influencing national policy in the UK: The research findings and
approaches have had impacts at both national and international level. CMIT
findings informed the Department of Health (UK) policy document Be
active, be healthy, showing why LGBT people might be deterred from
physical activity (5.7). The recommendations of CMIT were taken up by the
UK Drug Policy Commission (5.8) and used in the UK Cabinet Office's Call
to end violence against women and children (5.9). The
Equalities and Human Rights Commission Report uses this research to
address homophobia in the UK and inform work on ageing and older people
(5.11). The research was also used as part of the evidence base for the
companion report for the national LGBT Outcomes Framework that makes
recommendations for action at local, regional and national levels (5.11).
Influencing policy in Australia: The research has informed
directly policy developments in Australia through the National LGBTI
Health Alliance, responsible for a range of organisations and individuals
from across Australia that work in a variety of ways to improve the health
and well-being of LGBT communities. In particular, insights from UoB's
participative approach to research and service developments has been used
in the Alliance's pathways to inclusion for mental health and suicide
prevention services, and health services document (5.12). In the state of
Victoria, the GLVH, an LGBTI health and well-being policy resource unit,
has used the research in its guide to GLBTI Inclusive practice for health
and human services (5.13). The Brighton & Hove LGBT Housing Strategy
is being used to aid advocacy and wellbeing in gay and lesbian health by
the charity Open Door in Australia.
Reshaping mental health services: The evidence for the need for
LGBT-specific services underpinned the establishment of MindOut as an
independent charity, informed practitioner debate and reshaped local
service delivery to meet the needs of LGBT people. Findings on mental
health from the two studies were used by MindOut to help secure its future
by two successful bids to the Big Lottery and local health funding (total
funding: £485k) to provide appropriate services for LGBT people with
mental health issues and expand their delivery (5.14). The research
findings supported the development of a senior practitioner at MindOut.
Allsorts an LGBT youth project changed their practice through the
appointment of a new mental health worker (5.14).
In Brighton and Hove, the local NHS and City Council used the research to
indicate levels of local LGBT need and to provide a rationale for targeted
community mental health services. CMIT data around mental health issues
informed equality and diversity training for members of the GP Clinical
Commissioning Group and GP Practice Managers (5.15). As a result of
findings from CMIT, the Sussex Partnership NHS Foundation Trust has stated
that it `decided to respond proactively in reaching out to LGB and T
people to raise awareness of mental health issues' and that they `are
listening to what local LGB and T people want and showing how we provide
it by demonstrating that our services are LGBT affirmative' (5.16). CMIT
research recommendations resulted in two LGBT workers being recruited to
RISE, a charity that supports women and families affected by domestic
abuse, benefiting gay men and trans people who might otherwise be excluded
from services focused on women/heterosexual men (5.17).
Sources to corroborate the impact
5.1 Evidence in the form of citations in Brighton and Hove City Council
reports is available for each of these specific areas. One example is
provided as follows: Brighton & Hove City Council Housing Strategy
2009-2014: healthy homes, healthy lives, healthy city. Available at:
http://www.brighton-hove.gov.uk/content/housing/general-housing/housing-strategy-2009-2014-healthy-homes-healthy-lives-healthy-city
[Accessed: 8 November 2013]. Page 12 reports on consultation with
research.
5.2 Testimonial from Housing Strategy Manager, Brighton and Hove City
Council confirming how the research has provided a resource unavailable
from traditional engagement routes.
5.3 Irish LGBT community organisations (GLEN and BeLong). Available at: http://www.hse.ie/eng/services/Publications/services/Mentalhealth/SuportingLGBTLives.pdf
[Accessed: 8 November 2013]. See bibliography.
5.4 Brighton and Hove Suicide Prevention Strategy 2008-11. Available at:
http://www.brightonhovecitypct.nhs.uk/about/ourorganisation/boardmeetings/papers/boardpapersjuly08.asp
[Accessed: 8 November 2013]. The strategy is provided under the link for
June 2008 board papers and the research is incorporated from page 18
onwards.
5.5 Brighton and Hove's Single Equality and Human rights Scheme 2010-13.
Available at: http://www.brightonhovecitypct.nhs.uk/about/community/equalityanddiversity/documents/NHSBrightonandHoveSingleEqualityandHumanRightsScheme2010-13.pdf
[Accessed: 8 November 2013] CMIT is referenced in NHS on pages 5, 6, 15,
and 20.
5.6 NHS Brighton & Hove/Brighton & Hove City Council (2010)
Annual Report of the Director of Public Health. Available at: http://www.brightonhovecitypct.nhs.uk/about/documents/3559CouncilDPHReport2011newlores.pdf
[Accessed: 8 November 2013] Chapter 7 includes underpinning information
from both studies.
5.7 Department of Health (2009) Be active, be healthy: a plan for
getting the nation moving. Available at: http://webarchive.nationalarchives.gov.uk/+/www.dh.gov.uk/en/publicationsandstatistics/publications/publicationspolicyandguidance/dh_094358
[Accessed: 8 November 2013]. Research is incorporated into section 2.6,
page 68.
5.8 UK Drugs Policy Commission (2010) The Impact of drugs on
different minority groups: LGBT groups. Available at: http://www.ukdpc.org.uk/publication/the-impact-drugs-different-minority-groups-lgbt-groups/
[Accessed: 8 November 2013]. See pages 82 and 90.
5.9 Call to end violence against women and girls: equality impact
assessment. (2011) Available at: http://www.homeoffice.gov.uk/publications/crime/call-end-violence-women-girls/vawg-eia?view=Binary
[Accessed: 8 November 2013]. See page 7).
5.10 Equality and Human Rights Commission research reports. Available at:
http://www.equalityhumanrights.com/publications/our-research/research-reports/
[Accessed: 8 November 2013]. Equalities and Human Rights Commission report
no. 38 on Homophobia (see page 17); no. 34 - Sexual orientation 2008, (see
pgs 145, 200, 208, 210, 221, 225, 303, and 306), and; `Don't look back?'
(see pgs 17, 23 and 25).
5.11 `The Lesbian, Gay, Bisexual and Trans Public Health Outcomes
Framework and Companion Document.' Available at: https://www.google.co.uk/url?sa=t&rct=j&q=&esrc=s&source=web&cd=2&ved=0CDQQFjAB&url=http%3A%2F%2Fwww.lgf.org.uk%2Fdownloads%2F191&ei=QmCDUtTOKIPxhQfz74DQDw&usg=AFQjCNH9djK_8sKDeAVI4x65m-2bo1gfbQ&sig2=TTjlkVE4lnGyA5OSJL15vw
[Accessed: 8 November 2013]. This uses the research as part of the
evidence base.
5.12 Australian National LGBTI Health Alliance, Pathways to Inclusion,
2012. Available at: http://www.lgbthealth.org.au/sites/default/files/Pathways%20to%20Inclusion%20May%202012v5.pdf.
[Accessed: 8 November 2013]. Page 6 and page 20.
5.13 GLVH `Well Proud' A guide to inclusive practice for health and human
services.' Available at: http://www.glhv.org.au/node/589.
[Accessed: 8 November 2013]. Pages 48 and 51.
5.14 Testimonial available from Director of MindOut, LGB and T mental
health project that confirms the appointment of a new mental health worker
and change in practice.
5.15 Testimonial available from Equality and Diversity Manager, NHS
Sussex, that confirms impact on training to address and target services.
5.16 Testimonial from Sussex Partnership NHS Foundation Trust. Available
at: http://www.countmeintoo.co.uk/service_response.php
[Accessed: 8 Nov 2013].
5.17 Testimonial available from RISE that confirms the recruitment of two
new LGBT workers.