Transforming attitudes to mental health: using art festivals to access hard-to-reach communities
Submitting Institution
University of StrathclydeUnit of Assessment
Social Work and Social PolicySummary Impact Type
SocietalResearch Subject Area(s)
Medical and Health Sciences: Public Health and Health Services
Summary of the impact
Research conducted at Strathclyde has shown that current pathways which
focus on education
and public information are failing to transform attitudes to mental health
amongst low-income
communities and black & ethnic minorities. Drawing on this research,
an annual Mental Health Arts
Festival has been created. Since 2008 the event has engaged over 40,000
people, and is now one
of the largest arts and social justice festivals in Europe. The Festival
has affected the ways in
which these `hard to reach' groups are involved in addressing stigma and
mental health, has
changed approaches to the delivery of mental health awareness lessons in
schools and
communities, has led to NHS boards building the festival into their health
improvement policies and
strategies, and has been a central part of the Scottish Government's
national anti-stigma `see me'
campaign. The idea of a dedicated arts festival has been replicated
elsewhere in the UK and
internationally, and is transforming the attitudes and behaviour within
black and minority ethnic and
low-income communities to mental health.
Underpinning research
Context
Mental health is one of the top public health challenges in Europe,
affecting more than a third of
the population every year, and accounting for just under 40% of all years
lived with disability.
Whilst diagnosis, medical interventions, and treatment rates are
improving, stigma, discrimination
and exclusion remains an issue. National governments across Europe have
developed education
programmes and information distribution/campaigns to increase awareness of
mental health in
order to change people's attitudes and behaviour toward mental illnesses.
Key Research findings
Research at Strathclyde has shown that alternative approaches are needed
to engage low-income
and black and minority ethnic (BME) communities with mental health issues
as current anti-stigma
programmes are failing to reach and influence behaviour in these groups.
Four parallel research studies undertaken at Strathclyde in partnership
with the NHS and local
authorities have examined the prevalence of stigma and discrimination
within both of these
traditionally hard to reach communities, as well as with those communities
with higher than
average rates of mental health issues.
Using different geographical scales of analysis, the studies included
research with low-income
communities in East Glasgow [1], an exploration of patterns of stigma and
discrimination and
community responses with the 3 major black and minority ethnic (BME)
communities across
Glasgow [2, 3], and a systematic analysis, over a 5-year period, of the
way in which the national
media reports about people with severe mental health problems in Scotland
[4]. The research also
revealed the limited impact of current Government interventions within the
groups in changing
attitudes and behaviour. It was concluded that there was a risk that the
Scottish Government's
national programme and that of other European governments was worsening
major pre-existing
health inequalities within low income and BME communities.
In concluding that anti-stigma programmes were failing to bring about
transformative change in
low-income or BME communities, the research found that: there was
inadequate investment in
creating effective partnerships between the communities and professionals,
and consequently was
reinforcing exclusion [1,2]; many of the approaches adopted in practice in
campaigns were socially
and culturally inappropriate to enable information to reach all
communities [3,4]; and in particular,
that the focus on health and education, and the associated negative
portrayal of mental ill-health
[4,5] were key elements contributing to the disengagement of these
communities.
The Strathclyde research indicated that to achieve a greater impact on,
and reach into, BME and
low-income communities alternative forms of engagement were desirable,
replacing the current
approach of providing information in writing or through adverts. Drawing
on experiences in other
contexts, it proposed the use of festivals and different art forms (such
as narratives and cultural
engagement) to explore mental illness and empower marginalised
communities. Arts festivals, the
research concluded, have the advantage of generating positive contact
between marginalised
groups and the wider population in relation to mental health, placing
mental health issues within
different socio-cultural contexts, and increasing knowledge of mental
health issues. It also
indicated that the process of co-production associated with such festivals
encouraged dialogue,
involved a wider range of communities and organisations, and reduced the
risk of stigma and
marginalisation when those with mental health issues and experiences were
active participants.
Key researchers at University of Strathclyde
The research was conducted by Neil Quinn, Senior Lecturer in Social Work
(2004 to present) and
Lee Knifton, researcher at Mental Health Foundation and then from 2011
onwards, Senior
Research Fellow at Strathclyde.
References to the research
References 2 and 3 are included in the REF2 submission UoA22.
1. Quinn, N and Knifton, L (2005) Promoting recovery and addressing
stigma: mental health
awareness through community development in a low-income area, International
Journal of Mental
Health Promotion, 7 (4), 37-44. (http://www.ijmhp.co.uk/2005.htm)
2. Knifton, L, Gervais, M, Newbigging, K, Mirza, N, Quinn, N, Wilson, N
and Hunkins-Hutchison, E
(2010) Community conversation: addressing mental health stigma with ethnic
minority
communities, Social Psychiatry and Psychiatric Epidemiology, 45
(4), 497-504.
3. Knifton, L (2012) Understanding and addressing the stigma of mental
illness with ethnic minority
communities, Health Sociology Review, 21 (3), 287-98.
5. Quinn, N and Knifton, L (2009), Addressing stigma and discrimination
through community
conversation, in Bywaters, P, McLeod, E and Napier, L (eds) Social
Work and Global Health
Inequalities: Practice and Policy Developments, Sage, London, pp.
192-197.
Notes on quality: The research was published across peer-reviewed
journals (1-4) and in a
refereed international book (5). The research was funded by awards from
Greater Glasgow and
Clyde Health Board (1, 2) and jointly by the Health Board and Scottish
Government under their
national `see me' programme (3). The research is widely cited, especially
(3) in international
research on stigma.
Details of the impact
Process from research to impact
The research highlighted the potential value and benefits to be derived
from Arts Festivals on
mental health, and the desirability of an inclusive team to produce such
an event. A broad-based
alliance of partners in Glasgow then worked explicitly to include those
with experiences of mental
health issues in the development of an arts festival. This consortium
involved the Scottish
Government, NHS Boards, the national anti-stigma campaign (`see me'),
national mental health
voluntary sector partners, arts organisations, local authorities, human
rights and equalities
agencies, academics, and community activists and groups. This broad-based
alliance of partners
adopted as their starting point, the Strathclyde research conclusions that
positive messages
through culture and art were likely to deepen reach into the BME
communities, to develop and fund
an arts festival focussed on mental health. The festival was designed to
promote positive attitudes
towards mental health, mental illness, support and recovery, and so
generate significant cultural
change amongst opinion through the insights and influences of the creative
arts. Evidence that the
research was significant can be seen in the fact that the Scottish
Government and NHS invited the
Strathclyde researchers to chair the group.
Type of impact: The formation of a national Arts Festival
has produced the following benefits
Annual cultural events:
The consortium created a month long annual festival (initially the Glasgow
Mental Health Arts
Festival but now Scotland wide) blending culture, contact and community
development in order to
engage and influence marginalised communities. The first was held in 2006,
and each year the
programme has led to the creation of 300 events each year using a range of
art forms such as film,
theatre, literature, visual arts, dance, and comedy (Source 1). In the
last five years since 2008, the
event has engaged over 40,000 people. It is one of the largest arts and
social justice festivals in
Europe (Source 2) supporting a network of 16 regional grassroots festival
groups covering all of
the major regions of the country, each having its own identity, structure
and purpose. With local
communities and mental health professionals organising events alongside
music, drama and
acting professionals, the Festival has involved high proportions of people
living in poorer areas,
minority ethnic groups and people with experience of mental health
problems. Lee Knifton acted as
Director of the Scottish Mental Health Festival in 2013.
The Scottish Mental Health Arts and Film Festival approach has been
replicated by similar events
in Northern Ireland (Source 3) and in Ireland (Source 4). An organiser of
the Northern Ireland event
has stated "The Scottish Mental Health Arts and Film Festival has been the
inspiration and impetus
for a similar Festival for Northern Ireland. The Scottish Festival's
collaborative model of
organisation, emphasis on inclusion, and incorporation of research on
impact have provided the
template for Northern Ireland" (Source 3).
Changing attitudes to mental illness: by challenging established
norms, improving social
welfare, contributing to campaigns for social change.
For example, at the North Lanarkshire festival in 2012, three community
forums (Motherwell;
Wishaw, Murdostoun and Fortissat; and Bellshill and District) pledged
their involvement in anti-stigma
action (Source 5), and enhanced cultural understanding of issues around
stigma and
mental health, for example increased positive attitudes to reduce stigma
amongst audiences
(Source 6). Referring to the Scottish Mental Health and Arts Festival,
Isobel McCarthy, Mental
Health and Wellbeing Development Officer for South Lanarkshire Council
said "Working in
partnership with our colleagues in NHS Lanarkshire, North Lanarkshire
Council and a variety of
local services to support the Scottish Mental Health Arts and Film
Festival to create an exciting
calendar of events this October (2012) has been a real privilege. The
opportunities this has
created for local people to engage in activities that support good mental
health and wellbeing and
promote recovery makes all the efforts worthwhile." (Source 10)
Influence on local communities and organisations:
This influence included new partnerships with teachers to deliver mental
health awareness lessons
in schools, with mental health groups to deliver training in workplaces,
and with community groups
to deliver a community conversation programme with BME communities (Source
7). Mental health
arts festivals are being incorporated within cultural strategies in
Glasgow and Renfrewshire, with a
new planning group being established, `The Creative Forum', which includes
a number of local
partners (Source 8). This has been supported through the embedding of
mental health in local
socio-cultural contexts through the choice of local venues including pubs,
prisons, shopping
centres, shop windows, libraries and community centres. The festival
programme in 2012 was
extended to new regions and genres, achieved record attendances and media
coverage, increased
online engagement, and developed new partnerships and projects. (Source 9)
There were more
than 100 articles during the Festival period from publications including:
The Scotsman; The Herald;
The Edinburgh Evening News; The Daily Record; The Evening Times; The
Skinny; STV Local and
The List. There were also discussions on radio stations such as: BBC Radio
Scotland; BBC 6
Music; The Vile Arts Radio Hour; and Radio Awaz, as well as a number of
local radio stations.
(Source 9)
Impacts on strategy of NHS and charitable bodies: influencing
policy and practice leading to
improved take-up or use of services, and improved health and welfare
outcomes.
Health Boards including NHS Greater Glasgow and Clyde, NHS Lanarkshire
(Source 10), and
NHS Lothian (Source 11) have built the festival into their health
improvement policies and
strategies. NHS Health Scotland has included the festival as part of its
planning and funding
arrangements since 2009, with the Scottish Government's National
anti-stigma `see me' campaign
adopting the festival as part of their national strategy (Source 12). The
Campaign Implementation
Manager for `see me' has stated that "One of the key elements of this
success (of `see me') has
been the unwavering partnership working bringing together numerous
national and local
organisations as well as hundreds of dedicated individuals" On the `see
me' website (Source 13) it
notes regarding the 2012 annual festival "This year's Scottish Mental
Health Arts and Film Festival
(SMHAFF) was the sixth time that the Festival brought together thousands
of people to celebrate
and explore the meanings of mental health. 'see me' is proud to say that
we are one of the
founding partners of SMHAFF and have been one of its main funders from the
beginning."
The overall impact of the research into the prevalence of stigma and
discrimination around mental
health within traditionally hard to reach communities has led to an annual
programme of cultural
events, which is now emulated in other parts of the United Kingdom, and
forms part of wider
government and NHS strategies to promote positive attitudes to mental
health.
Sources to corroborate the impact
- For link to University of Strathclyde involvement in Scottish Mental
Health and Arts Festival see
http://www.mhfestival.com/about/partners
- The Welsh Arts Festival, Unity, itself one of the largest festivals in
Europe, involves about 8000
people (http://www.hijinx.org.uk/unity-2012/)
- Statement from organiser of Northern Ireland Mental Health Film
Festival
- Events in Northern Ireland http://firstfortnight.ie/
- eLanarkshire Mental Health Resources: http://www.elament.org.uk/news/2012/10/30/north-lanarkshire-community-forums-back-campaign-to-reduce-stigma-of-mental-ill-health.aspx
- Analyses of participants conducted by Peter Byrne (East London NHS
Foundation Trust and
University College London) and by Rona Dougall (NHS Greater Glasgow and
Clyde) for Royal
College of Psychiatrists and NHS, funders of the Festival.
http://www.tandfonline.com/doi/pdf/10.1080/17533015.2012.663766
- Mental Health and Well-being in Greater Glasgow and Clyde Anti-Stigma
Partnership (2009)
http://library.nhsggc.org.uk/mediaAssets/Mental%20Health%20Partnership/Anti%20Stigma%20Catalogue%202009.pdf
- Renfrewshire Council (2013) Scottish Mental Health Arts and film
Festival, at
http://www.renfrewshire.gov.uk/webcontent/home/services/social+care+and+health/mental+health/sw-mc-artsandfilm-festival
-
Scottish Mental Health Arts and Film Festival Report, at
http://seemescotland.org.uk/images/pdfs/smhaff_2012_festival_report.pdf
- NHS Lanarkshire (2013) Scottish Mental Health Arts and Film Festival
2013, at
http://www.elament.org.uk/news.aspx?filterby=SMHAFF
- NHS Lothian (2011) A sense of belonging: A joint strategy for
improving the mental health and
wellbeing of Lothian's population 2011-2016
http://www.nhslothian.scot.nhs.uk/OurOrganisation/Strategies/Documents/SenseOfBelonging.pdf
- Statement from Campaign Implementation Manager for `see me'
- http://www.seemescotland.org.uk/latestnews/511-2012-smhaff-report