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The importance of person-centred social support has been recognised by successive governments as central to the development of effective and supportive social care services. The research led by Brunel and funded by the DoH and the Joseph Rowntree Foundation, made a substantial contribution to the enhancement of UK social care policy and practice in relation to the personalisation agenda. Parliamentary committees and policy consultation used the research to develop new social care policy. Standards of service care delivery were developed and implemented in partnership with service users; these were adopted at a policy and practice level. The development and use of evidence based practice guides, training programmes and web resources facilitated the successful adoption and implementation of person-centred support nationwide. In summary, public debate was influenced, equality and empowerment for service users was advanced, national policy and practice enhanced, health and welfare improved and economic impacts achieved.
A major element of modernising English adult social care is the introduction of individual, user-directed budgets. The Social Policy Research Unit (SPRU) led a major, multi-method and multi-centre research programme evaluating the Individual Budget (IB) pilot projects in England; and a linked study of the impact of IBs on family carers. Through this, SPRU has influenced: the content of the Department of Health's (DH) good practice guidance for personal budgets; the DH's approach to piloting and evaluating NHS Personal Health Budgets; the Department for Work and Pensions (DWP) piloting and evaluation of `Right to Control' trailblazer projects; and, the agenda for an Audit Commission investigation into financial management of personal budgets. Most importantly, it has helped shape the agenda for national and local organisations striving to successfully implement personal budgets, particularly for older people.
Although essential for coping with escalating health and social care demands, adoption of `remote care' — telecare and telehealth — has been slow. Professor Barlow's research group provided evidence to establish how remote care can be sustainably and efficiently embedded into healthcare. They then helped design and evaluate the Department of Health's Whole System Demonstrators, the world's largest trial of remote care. As a consequence, the government launched the 3 Million Lives programme in January 2012, with an estimated potential net benefit to the NHS of £450m over the next 5 years. Research taken up by the Audit Commission and TSB/DTI has further influenced UK remote care policy by developing the evidence base and evaluating gaps in basic research.
This research improved policy-makers' and practitioners' understanding of well-being among residents of social care facilities by identifying the factors contributing to residents' quality of life. This research resulted in the development of the Adult Social Care Outcomes Toolkit (ASCOT), whose use is rapidly increasing both in the UK and internationally. Evidence from beneficiaries including policy-makers, experts and service practitioners, as well as interviews with service users, indicates that ASCOT captures aspects of well-being that are highly valued by service users and policy-makers alike.
The Personal Social Services Research Unit (PSSRU) at the University of Manchester (UoM) has run a programme of research examining community care of older people since 1996. The findings have informed key government decision-making around two important national policy initiatives between 2008 and 2013: (1) the development and implementation of Personal Budgets in Social and Health Care and (2) National Strategies to improve Dementia Services. This has affected the national provision of social care for older people and other adult social care users. In 2011-12, there were over 1.2 million people in England receiving social care affected by these policy changes (over 800,000 aged 65+), with a cost of £6,600m spent on their care (NHS and Social Care Information Centre).
Research by Community and Health Research Unit (CaHRU) broadly impacted on healthcare provision and care received by patients from ambulance services. The research directly informed policy and was a key factor in improving prehospital care for emergencies by directly influencing care systems, regulators, ambulance services, paramedics, and service users, initially in the East Midlands and subsequently throughout England from 2008 onwards.
The research which aimed to improve quality of ambulance care led to: development of new clinical quality indicators for ambulance services in England; benchmarking of service quality; initiatives to address gaps in care; measurable improvements in managing pain, heart attack, stroke, asthma and diabetes across all English ambulance services. Regulators now use these quality indicators to assess ambulance trusts in England.
Accurate recording of adult SPC activity using the revised MDS has resulted in the transformation of SPC services. The MDS provides economic benefits by informing the planning and funding of local services by capturing full service costs and is being used to develop a new NHS funding system for SPC. Informing accurate audit and national benchmarking of services, it shows how revised service composition, enhanced day care, and seven day services, are contributing to reduced hospital admissions. This has both policy and economic benefits. It demonstrates how services are addressing SPC provision for non-malignant disease, a key policy driver.
This case study is based on a series of major studies by academic staff at City University London relating to quality, safety, choice and organisation of birth in different settings. Their research has been widely cited and debated by policy, professional and user groups, nationally and internationally. The key impact has been on national and international guidelines for commissioning and on reconfiguration of services to include Midwife Units, to tackle the rising rates of intervention in childbirth and to underpin informed choice for patients. The research is being used by policy-makers, commissioners and managers to plan future services and by midwives to support informed choice discussions.
In a context of austerity and shrinking public provision, developed societies are turning to new technologies such as telecare for health/social care provision, and biosensors to facilitate citizens' active self-care. Maggie Mort, Celia Roberts and Adrian Mackenzie's research explores the overlooked ethical and social aspects of this trend focussing on ageing, reproduction and genetics. Through innovative engagements with policy makers, industry, citizens, health experts and practitioners, we provide empirical intelligence about how remote care for older people living at home (telecare) and providing users with bodily data (biosensing) work in practice. Because the views and experience of users and citizens underpin our research, our interventions confer much-needed legitimacy on subsequent decisions about health care technologies and provision. Our recommendations are adopted in local authority service re-design and have shaped corporate decision-making about product development.
This research into what is believed to be one of the largest care home closures programmes in Europe had three key impacts in terms of: