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Dr Rosa Hoekstra engages in research on the biological, cultural and cognitive aspects of autism, and in communicating the findings of these studies to a wider audience. Her involvement in developing a rapid quantitative instrument of autistic traits has aided diagnostic practice. Through The Open University's OpenLearn website and open educational resources associated with the Health Education And Training (HEAT) programme, Hoekstra contributes to raising autism awareness both in the UK and abroad.
Autism or autistic spectrum disorder (ASD) is a lifelong neurodevelopmental condition that affects around 700,000 people in the UK. Until recently knowledge of autism prevalence was mainly restricted to children, but in 2007 the Adult Psychiatric Morbidity Survey (APMS) included for the first time a measure of ASD. Professor Traolach (Terry) Brugha and his group developed an innovative methodology to measure the prevalence of autism in adults — previously not thought possible — and found it to be just over 1% of the population studied. The evidence collated by the Social and Epidemiological Psychiatry group has led to a range of actions across central and local government as well as the charitable sector, and since 2010, has transformed diagnostic and support services. It has also improved professional training, changed attitudes across society and reduced the isolation and exclusion that adults with autism often face.
Our research has had substantial impact on the mental health and welfare of children with suspected autistic disorders, on their education, on the well-being of their families, and on the activities of healthcare professionals and their services for children in both paediatric and psychiatric practice. We developed a new diagnostic test for autistic spectrum disorders, which allows for better, more reliable diagnosis of these conditions. The test has been included in healthcare guidelines and professional standards in the UK and many other countries around the world, including influencing the revision of the Diagnostic and Statistical Manual of the American Psychiatric Association (DSM-5).
The Autism Centre for Education and Research (ACER) champions the development and implementation of enhanced autism provision for children, young people and adults across England through influencing professional standards and practice. Key examples of the Centre's application of its research to enhance professional practice include: