Summary of the impact

CIRCA, Computer Interactive Reminiscence and Conversation Aid, is a novel touchscreen computer system designed to support conversation between people with dementia and their caregivers. CIRCA was based on research into the memory and communicative problems of people with dementia. The beneficiaries of this research are: i) practitioners and professionals in healthcare services, who have improved training and caregiving relationships - a total of 46 NHS, third sector and private care organisations from across the UK have installed CIRCA since 2009; and ii) people with dementia, who have enhanced social interactions and quality of life.

Summary of the impact

World leading research from the Bradford Dementia Group (BDG) has transformed policy and practice in dementia care by demonstrating the need to understand the experience and perspective of people living with dementia in order to ensure their well-being. It has provided a model of dementia care, Person-Centred Care (PCC), and an observational measure and practice development methodology, Dementia Care Mapping (DCM). In England, PCC and DCM are integral to the National Institute for Health and Care Excellence (NICE) guidelines and DCM is endorsed by the National Audit Office. Regulators use our DCM derivative, the Short Observational Framework for Inspection (SOFI) to audit care. Our research has wide international reach. Since 2008, 3616 practitioners have been trained in DCM in the UK and a further 3189 internationally.

Summary of the impact

Newcastle research on dementia contributed two aspects that helped to shape high-level policy: first that prevalence of the condition was higher than previously suspected, with implications for care of the ageing UK population. Secondly, that patients often experienced long delays before a diagnosis of dementia was given, leading to distress both for patients and their families. This research informed policy documents such as the Prime Minister's 2012 Challenge on dementia and national guidance in the form of commissioning packs. Patients benefit from more timely diagnosis with a better understanding of their needs and wishes and the NHS benefits through potential reductions in long term care costs.

Summary of the impact

King's College London (KCL) research and the engagement of KCL researchers in the process of national policy formation have led to the implementation of early diagnosis for people with dementia. Being diagnosed early and well is one of the most important interventions for people with dementia and their families, ensuring effective interventions can be provided early and throughout the course of the illness. This is the fundamental aim of the Croydon Memory Service Model, initially developed by KCL researchers. KCL research has also featured in patient-focused literature and in reports circulated globally by the World Health Organization and Alzheimer's Disease International.

Summary of the impact

Research by Professor Carol Brayne, has led to increased understanding and awareness of dementia as a key public health issue of our time. Outcomes of her DH/MRC funded longitudinal Cognitive Function and Ageing Studies (CFAS) have contributed to national and international health policy on dementia as well as public debate.

Specifically, the CFAS study provided evidence that was used in the highly influential report "Dementia UK" which led to the development of the 2009 National Dementia Strategy. Results from CFAS have increased healthcare workers' understanding of the condition, such as the complexity of cognitive impairment and the relationship between illness and disability.

Summary of the impact

Dementia poses substantial public health and societal challenges for Europe as there is currently no cure, and it is estimated that 10 million Europeans will be living with the disease in 2040. Good quality information allows for decision-makers to establish appropriate health policies and target resources where they are needed and where they are effective. The ALCOVE project (2011-2013) established a European network where knowledge on dementia could be shared and developed a series of recommendations for improving dementia care and quality of life across Europe. A particular strand of research within the project on timely diagnosis of dementia led by Worcester's Association for Dementia Studies has already stimulated policy debate on this issue in the UK and elsewhere in Europe, while a `toolbox' developed through the project for those living with dementia and their carers and for health and social care professionals has informed care practice.

Summary of the impact

There are very few evidence-based psychological interventions for people with Alzheimer's disease and other dementias. Of these, cognitive stimulation has the strongest evidence-base. Developed by Bob Woods (Bangor University) and Martin Orrell (UCL) in the late 1990s, the approach has proven effective in maintaining both cognitive function and quality of life. Recommended in guidelines around the world for use with people with mild to moderate dementia as the major evidence-based non-pharmacological intervention, it has assisted literally thousands of people with dementia and their carers globally to have a better quality of life both before and since 2008.

Summary of the impact

Cognitive Stimulation Therapy (CST) is an evidence-based, brief, group therapy for people with mild to moderate dementia. It was developed and evaluated by UCL in collaboration with Bangor University. Our research showed significant benefits in cognition and quality of life plus cost-effectiveness. Cognitive Stimulation for people with mild/moderate dementia of all types is recommended by NICE and is now in widespread use across the UK and the rest of the world in a variety of settings including care homes, hospitals and the community. A recent audit by the Memory Services National Accreditation Programme reported that 66% of UK memory clinics surveyed were using CST.

Summary of the impact

The project:

1. Achieved positive changes in local health and social care policy and practice that directly responded to the concerns and experiences of older people;
2. Enhanced the knowledge and practice of practitioners and policy makers, at national and local levels, about the experiences of older people and carers of moving across service boundaries ("transitions");
3. Developed approaches that researchers and service commissioners and providers can employ to 1) involve marginalised older people in research and service development and 2) promote the citizenship of older people through their participation as co-researchers;
4. Made the research findings accessible to practitioners and service providers through feedback events and workshops.

Summary of the impact

Dementia with Lewy bodies (DLB) is one of the most common subtypes of dementia. Although DLB shares characteristics with Alzheimer's disease, the condition requires specific treatment and care. New diagnostic criteria generated at Newcastle allow diagnosis of DLB as a distinct condition from Alzheimer's, and these criteria have been incorporated into five national and international guidelines. The work also resulted in an accurate and sensitive diagnostic technique, commercialised by GE Healthcare as the DaTSCAN imaging tool, which is approved by the US Food and Drug Administration and the European Medicines Agency. These new diagnostic criteria allow appropriate treatment and management of DLB for the first time.