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Dr Rosa Hoekstra engages in research on the biological, cultural and cognitive aspects of autism, and in communicating the findings of these studies to a wider audience. Her involvement in developing a rapid quantitative instrument of autistic traits has aided diagnostic practice. Through The Open University's OpenLearn website and open educational resources associated with the Health Education And Training (HEAT) programme, Hoekstra contributes to raising autism awareness both in the UK and abroad.
Our research has had substantial impact on the mental health and welfare of children with suspected autistic disorders, on their education, on the well-being of their families, and on the activities of healthcare professionals and their services for children in both paediatric and psychiatric practice. We developed a new diagnostic test for autistic spectrum disorders, which allows for better, more reliable diagnosis of these conditions. The test has been included in healthcare guidelines and professional standards in the UK and many other countries around the world, including influencing the revision of the Diagnostic and Statistical Manual of the American Psychiatric Association (DSM-5).
The Autism Centre for Education and Research (ACER) champions the development and implementation of enhanced autism provision for children, young people and adults across England through influencing professional standards and practice. Key examples of the Centre's application of its research to enhance professional practice include:
The AHRC-funded project `Imagining Autism' has had a significant, and in some cases life-changing, impact on the participants and their families, as well as on educational psychologists, charities and experts working in the fields of autism and cognitive functioning. The impacts are two-fold:
The project has challenged stereotypes and departed from skills-based interventions (which focus narrowly on specific cognitive or social skills, such as counting, or dressing) prevalent in education and health settings, leading to new understandings of the capabilities of a marginalised group. It has demonstrated its capacity to transform lives.
Professor Stuart Murray's research on the cultural narratives used to represent autism has influenced and inflected different areas and beneficiaries, from public health providers to arts companies. This case study describes how his research in particular:
Autism Spectrum Disorder (ASD) is a lifelong condition, but has almost never been examined in adults over the age of forty years. Following an earlier bid for funding to examine this issue, Prof. Stuart-Hamilton was commissioned by the Welsh Assembly Govt (WAG) via the charity Autism Cymru to conduct a quantitative survey of problems faced by older adults with Autism Spectrum Disorder (ASD). A companion qualitative survey, involving interviews with a small sample, was conducted by colleagues at Bangor University. A formal report (consisting of Prof Stuart-Hamilton's and Bangor's findings) and a refereed paper (solely of Stuart-Hamilton's findings) have been published, predating other studies in this field that have since begun to appear in the UK and internationally. The report was formally adopted by WAG, leading to a national awareness-raising publication campaign and presentation of the report as part of WAG's ongoing strategy. Integration of the report's recommendations into government policy is anticipated when the ASD policy is revised in early 2014.
In 1999 Kerstin Dautenhahn proposed a new multidisciplinary research direction encompassing robotics, psychology, assistive technology, interaction design, human-robot interaction and autism therapy. In 2005 she began developing the humanoid robot Kaspar, whose evaluations suggested therapeutic suitability for children with autism. Ongoing research a) led to the development of appropriate human-robot interaction technology, interaction scenarios and methodological approaches b) stimulated national and international public discourse on robot-assisted therapy for children with autism; and c) informed practitioners' views on using robot technology in autism therapy. A former doctoral student also exploited her Hertfordshire training via an international robotics start-up marketing toys for children with autism.
Memory research in Autism Spectrum Disorder (ASD) undertaken at City University London over the past two decades shows that individuals with ASD experience great difficulty in spontaneously recalling past events without retrieval support. This work has been extended recently to show that a widely-used forensic interviewing technique (the Cognitive Interview) is not effective in improving the eyewitness accounts of adults with ASD. The key impact from this research has arisen from continuing knowledge transfer to Police forces and the Ministry of Justice with the aim of amending good practice guidelines for interviewing eyewitnesses with ASD. This is being achieved through a series of workshops and training activities, which to date have reached around 5000 police officers who are working on the ground.
Lancaster research has highlighted the pervasive health inequalities and inadequate services experienced by people with learning disabilities (LD). Our 2005 report commissioned by the Department of Health (DH) proposed the establishment of a specialist LD observatory for England. This proposal was taken up by a government-commissioned independent inquiry and accepted.
The same team is one of three partners who, through a competitive tender process, have since 2010 been operating the first specialist LD public health observatory in the world. The observatory collects, analyses and summarises health information to improve the data available to DH and other stakeholders thereby improving the health of people with LD.
In 2008, the University of Hertfordshire joined, as principal investigators for England, the World Health Organization's Health Behaviour in School-aged Children study. European and US policy makers use this long-running cross-national project to set directions for young people's health and wellbeing. Our findings (2011) directly informed policy in the departments of Health and Education, and were identified as a key data source underpinning the Department of Health's outcomes framework for children and young people. Our team also co-authored the World Health Organization's four-yearly international report for 2012, a widely influential document in health care policy and practice.