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A key challenge for UK Government is to identify how older generations can continue to live independently in their own homes. The UK's changing demographics, recent increases in the cost of institutional care coupled with its declining availability make this a priority for policy makers. A twelve stage research programme undertaken by Professor Tinker has investigated how improved home care and assistive technologies including aids and adaptations could be employed to enable older people to remain at home longer. It examined and costed these options and provided recommendations on how they, and other specialised housing types such as sheltered housing, could be provided. Central government, local authorities and housing associations have employed her findings in revising their approaches to housing support for this rapidly growing population. Her findings have recently been employed by governments in Europe, Canada, the USA, Australia and the Far East in their reappraisals of policy on assisted living in later life.
Quality of care for the increasing numbers of frail older people is an issue of international concern. Led by Professor Meyer at City University London, in partnership with Age UK and Dementia UK, My Home Life (MHL) is a collaborative movement of people involved with care homes for older people. It was established to improve the quality of life of everyone connected with care homes for older people and has become the recognised voice for the sector. The original underpinning research and ensuing projects all focused on knowledge translation, in particular the factors that enhance quality improvement in care homes. MHL actively works with care homes to progress quality improvement and share the lessons learned throughout the system. The programme has had a significant impact on both policy and practice in health and social care, influencing Government policy and supporting practice improvement across national and international borders.
Research into participative practice and well-being with older people has contributed directly to the development and application of an ethic of care in policy and service delivery, as well as to practices in older people's participation, locally, nationally and internationally. The research has directly impacted on practitioners and practice developments in services for older people, with learning resources (co-designed with practitioners and older people) being used in professional education and training across the UK and in New Zealand. An innovative participatory methodology has both enhanced older people's participation locally and been adopted more widely by university community research collaborators working to enhance older people's citizenship and well-being (eg in Netherlands). Research has directly informed policy concerning older people's needs assessments by recognising the centrality of relationships to well-being in older age. The well-being research involving collaboration with service users and providers has been described as `exemplary' by the leading national charity Age UK.
This research into what is believed to be one of the largest care home closures programmes in Europe had three key impacts in terms of:
The research has had significant impact in the UK on the development of social and spiritual support for people at the end of life and their families. With Professor Holloway as Social Care Lead on the National End of Life Care Programme (NEoLCP) since 2009, the research has underpinned the launch of a framework for the delivery of social care at the end of life which is now in its second phase of implementation. The framework is endorsed by the Association of Directors of Adult Social Services and has led to local and regional Action Plans and social care practice initiatives. The research on spirituality has led to scoping and training initiatives in healthcare practice and in the funerals industry within the UK and internationally.
The Personal Social Services Research Unit (PSSRU) at the University of Manchester (UoM) has run a programme of research examining community care of older people since 1996. The findings have informed key government decision-making around two important national policy initiatives between 2008 and 2013: (1) the development and implementation of Personal Budgets in Social and Health Care and (2) National Strategies to improve Dementia Services. This has affected the national provision of social care for older people and other adult social care users. In 2011-12, there were over 1.2 million people in England receiving social care affected by these policy changes (over 800,000 aged 65+), with a cost of £6,600m spent on their care (NHS and Social Care Information Centre).
The project:
This case study demonstrates the impact of an inter-related body of research, undertaken by The Open University's (OU) Centre for Ageing and Biographical Studies, upon the ways in which older people experience everyday ageism, housing and design, and end-of-life care. The research has provided evidence for charities and non-governmental organisations (NGOs) seeking to shape government legislation, initiate action on age-friendly environments, and to change care practice. As a result it has helped inform the UK's Equality Act 2010, new guidance on toilets in public spaces, user-friendly extra-care housing and an exemplary training programme on end-of-life care in care homes.
Research by Professor Les Mayhew and Professor Ben Rickayzen at City University London on the question of how the public sector and the private market might jointly establish a better way of funding long-term care for the elderly has influenced policy thinking and development within the Treasury, the Department of Health, the Dilnot Commission, the actuarial profession and among ministers and parliamentarians. Evidence is provided here that shows that their research on population ageing has had an impact at the highest levels in Whitehall. In addition, Mayhew's work on integrated health and social care for Brent Council has helped to transform services at local level and provides a model that could be replicated more widely.
The University of Nottingham's Sue Ryder Care Centre for the Study of Supportive, Palliative and End of Life Care has enhanced the understanding, implementation and uptake of advance care planning for end of life care. Its work has shaped public policy and influenced national initiatives that have improved quality of life and reduced the number of deaths in hospitals. The research has been cited as an exemplar by the World Health Organisation and has helped inform policymaking at European level. It has guided professional practice, educated care staff and contributed to a more positive public attitude towards talking about end of life issues.