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Research led by Professor Sue Yeandle at Leeds on working age carers has focused policymakers' attention on carers' contributions to society, their role in the health and social care system, and the issues they confront in reconciling paid work with unpaid care. The research findings have: (a) provided a vital evidence base, shaping policy work of the national charity, Carers UK, (b) influenced Government policy formation and evaluation, including playing a direct role in shaping the Government's National Care Strategy in 2008, and (c) informed wider policy and parliamentary debate supporting carers of working age.
Research into participative practice and well-being with older people has contributed directly to the development and application of an ethic of care in policy and service delivery, as well as to practices in older people's participation, locally, nationally and internationally. The research has directly impacted on practitioners and practice developments in services for older people, with learning resources (co-designed with practitioners and older people) being used in professional education and training across the UK and in New Zealand. An innovative participatory methodology has both enhanced older people's participation locally and been adopted more widely by university community research collaborators working to enhance older people's citizenship and well-being (eg in Netherlands). Research has directly informed policy concerning older people's needs assessments by recognising the centrality of relationships to well-being in older age. The well-being research involving collaboration with service users and providers has been described as `exemplary' by the leading national charity Age UK.
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Research on telehealthcare at the University of Stirling has guided the delivery of telehealthcare at home in West Lothian Scotland in the first instance, subsequently influencing decisions to adopt and implement telehealthcare in communities in Norway, Greenland, the Faroe Islands, Sweden, the Western Isles and Shetland. Research was translated into the MAST (Methodology for the ASessment of Telemedicine) manual, a practical tool which has been used across Europe by decision makers considering telehealthcare implementation. Through the DSDC (Dementia Services Development Centre) at the University, telehealthcare information and guidance has been provided to thousands of service providers and family care givers.
The Personal Social Services Research Unit (PSSRU) at the University of Manchester (UoM) has run a programme of research examining community care of older people since 1996. The findings have informed key government decision-making around two important national policy initiatives between 2008 and 2013: (1) the development and implementation of Personal Budgets in Social and Health Care and (2) National Strategies to improve Dementia Services. This has affected the national provision of social care for older people and other adult social care users. In 2011-12, there were over 1.2 million people in England receiving social care affected by these policy changes (over 800,000 aged 65+), with a cost of £6,600m spent on their care (NHS and Social Care Information Centre).
Research on residential care- and extracare-supported housing conducted by Swansea's Centre for Innovative Ageing (CIA) has impacted on the development and reconfiguration of supported housing services in Wales. Our research on care home closures has directly led to Welsh Government (WG) consultation on guidance regarding `escalating concerns' for care home closures, and the Independent Advisory Group on Local Authority Closure of Care Homes has recommended that our amendments to escalating concerns should be adopted in relation to care home closures due to strategic/policy reasons. Work is now underway by the WG to publish revised guidance in relation to care home closures based on our research. Three local authorities (Swansea, Vale of Glamorgan and Wrexham) have used our research on the challenges associated with extracare provision to inform the development of future services.
A major element of modernising English adult social care is the introduction of individual, user-directed budgets. The Social Policy Research Unit (SPRU) led a major, multi-method and multi-centre research programme evaluating the Individual Budget (IB) pilot projects in England; and a linked study of the impact of IBs on family carers. Through this, SPRU has influenced: the content of the Department of Health's (DH) good practice guidance for personal budgets; the DH's approach to piloting and evaluating NHS Personal Health Budgets; the Department for Work and Pensions (DWP) piloting and evaluation of `Right to Control' trailblazer projects; and, the agenda for an Audit Commission investigation into financial management of personal budgets. Most importantly, it has helped shape the agenda for national and local organisations striving to successfully implement personal budgets, particularly for older people.
The research has had significant impact in the UK on the development of social and spiritual support for people at the end of life and their families. With Professor Holloway as Social Care Lead on the National End of Life Care Programme (NEoLCP) since 2009, the research has underpinned the launch of a framework for the delivery of social care at the end of life which is now in its second phase of implementation. The framework is endorsed by the Association of Directors of Adult Social Services and has led to local and regional Action Plans and social care practice initiatives. The research on spirituality has led to scoping and training initiatives in healthcare practice and in the funerals industry within the UK and internationally.
Quality of care for the increasing numbers of frail older people is an issue of international concern. Led by Professor Meyer at City University London, in partnership with Age UK and Dementia UK, My Home Life (MHL) is a collaborative movement of people involved with care homes for older people. It was established to improve the quality of life of everyone connected with care homes for older people and has become the recognised voice for the sector. The original underpinning research and ensuing projects all focused on knowledge translation, in particular the factors that enhance quality improvement in care homes. MHL actively works with care homes to progress quality improvement and share the lessons learned throughout the system. The programme has had a significant impact on both policy and practice in health and social care, influencing Government policy and supporting practice improvement across national and international borders.
This case study demonstrates the impact of an inter-related body of research, undertaken by The Open University's (OU) Centre for Ageing and Biographical Studies, upon the ways in which older people experience everyday ageism, housing and design, and end-of-life care. The research has provided evidence for charities and non-governmental organisations (NGOs) seeking to shape government legislation, initiate action on age-friendly environments, and to change care practice. As a result it has helped inform the UK's Equality Act 2010, new guidance on toilets in public spaces, user-friendly extra-care housing and an exemplary training programme on end-of-life care in care homes.